In 2005, 2 days short of his second birthday, Elie’s son Emilio was diagnosed with Duchenne Muscular Dystrophy (DMD).
Duchenne Muscular Dystrophy is a severe muscle-wasting condition that affects 1 in 3,500 children, 99% of whom are boys.
Once diagnosed, children are normally confined to a wheelchair between the ages of 7 and 12, and most do not live past their early twenties. Duchenne Muscular Dystrophy has no cure and no one survives.
Elie founded Save Our Sons, to help fund human clinical trials aimed at finding a cure for Duchenne Muscular Dystrophy. Since Save Our Sons was founded, Elie has helped raise over $5.5 million!
Elie is a family man who loves spending time with his wife and kids.
Elie is a massive sports fan, especially the NBA.
“My work is 24/7 I have no end until I save my son and all our sons. I am just a dad.”
We are lucky enough to have spent 5 minutes with Elie to get a sneak peek into what life is like for him.
Who is your family made up of?
Myself, Nancy (wife), Emilio 12yrs old, Christian 11yrs old, Chloe 8yrs old and Ethan 3yrs old
What is a typical day with your family like?
Busy, sports, activities, homework and hanging out.
Who is one person in your life you are thankful for and why?
My son Emilio because he makes me a better person and allows me to appreciate the simple things in life and to put life into perspective.
Where do you live and if we were to visit you what would you show us?
I live in Campsie in Sydney NSW, I will show you organized chaos.
What is your greatest talent or ability?
My greatest talent and ability is the fact I am a people person.
If you had the attention of the world for just 10 seconds, what would you say?
If you could have any superpower, which would you choose?
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